So 2 months ago Nina was evaluated by Early Intervention and they closed the book on her. Then she was evaluated by NICU followup program and they did not agree with the Gross Motor Eval so Nina started PT yesterday. We love the therapist(she is the same one we had last year)
She told me much of Nina's issues come from lack of strength. So we really need to work her out and get her legs and arms and core stronger. Nina at this point cannot really use her legs to push a little push toy... She also wants us to get a mini trampoline...
The more I spoke to the Therapist, the more it became apparent that Nina is weak in her hands too...So I emailed the EI coordinator last night to request a do over for OT to see if she qualifies. I think she needs to be 25% delayed. I do think the EI eval from July was crap and they overlooked a lot of Nina's delays and just wanted to say that a 24 weeker had no delays.
Now don't get me wrong, we all think Nina is doing AWESOME! She is a sassy, bright kid who talks NON STOP! She is happy and pleasant and does well is school. I, like all mothers, want the best for their child. I want her to have any or all services that she requires.
We have been told time and time again that we are fortunate that way Nina turned out. I get that, and I am grateful that she is doing so great. I had 4 kids and she is my survivor in more ways than one.
So that's my update in a nutshell. All I can say to you guys is that if get an evaluation and still think something is not right, ask for a do over. We did not for the Gross Motor...Thankfully the NICU follow up program spoke up and said No Way, she needs some help!!!
Always push harder for your kid.
3 comments:
AGREE - you are a Wonderful Mother No one knows your child the way that you do. Lots of Love and Hugs from the App
I definitely would push for OT and just make sure that you talk up the stuff that Nina cannot do, and not the stuff that she can do. The services she'll receive once she turns 3 are FAR inferior on average than the ones available in the birth-to-three program and harder to get (they pay these therapists less well so the not-so-good ones are the ones who end up in the older part of EI). And the school district is a major pain in the butt to deal with, on top of everything else. So don't let the EI person get away with saying that Nina is getting close to three, that she should just wait, that there's a delay in services, etc etc. (We got that line for Hallie vis-a-vis PT and, even though Hallie qualified for PT during her transition evaluation, she didn't start getting seen, and then only sporadically, three months after her IEP took effect).
Amen!! I agree with you 100% Way to go fighting for Nina! Nina is very lucky to have you as her mom!
Leslie
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