All Nina wanted to be for Halloween was a black Abby cat. (our cat's name is Abby)
She is so cute I can't stand it! LOL!!
Friday, October 30, 2009
our black kitty
All Nina wanted to be for Halloween was a black Abby cat. (our cat's name is Abby)
She is so cute I can't stand it! LOL!!
Sunday, October 25, 2009
Got the first dose of the H1N1 on Thursday and we we back to the Dr the very night day with a double ear infection. I guess the blood in her ears from itching them should have clued me in a couple weeks ago on that...but it's been said before and published that our preemies had super high pain tolerance which makes me nuts, b/c she could be in lots of pain with her ears for this example and I have no flipping idea! She's on meds now and all will be fine.
She does have a cold to go along with the ear infection and her nasal drip is causing her cough to sound like she smokes a pack a day.
Nina is getting PT once month and OT once a month...not sure if this is helping...it's more of tracking at this point. She is prefers crawling up the steps when she needs to be working on building strength in her legs. We are on her to be strong! Be a big girl! Walk up those stairs! Her preschool teacher says she is off balance a lot, but is right in with the kids for most of the non- physical stuff. Nina's Gymboree teacher told me that she would probably catch up by the time she is 5. I wonder why she picked 5. Maybe her magic ball told her? What does it mean to catch up anyway?
I would love Nina to be able to hang out on the playground and not get pushed to the side by the kids younger than her to make their way up the steps to the slide... They tell me she needs to get stronger. OK, but I want to kick the asses of these 24 month old that zoom on past her as she tries so hard to climb up the steps...Guess I really want to kick the mom's asses that let their kids cut in line and then ask me how old she is and I tell them and they look at me like I have three heads.
She does have a cold to go along with the ear infection and her nasal drip is causing her cough to sound like she smokes a pack a day.
Nina is getting PT once month and OT once a month...not sure if this is helping...it's more of tracking at this point. She is prefers crawling up the steps when she needs to be working on building strength in her legs. We are on her to be strong! Be a big girl! Walk up those stairs! Her preschool teacher says she is off balance a lot, but is right in with the kids for most of the non- physical stuff. Nina's Gymboree teacher told me that she would probably catch up by the time she is 5. I wonder why she picked 5. Maybe her magic ball told her? What does it mean to catch up anyway?
I would love Nina to be able to hang out on the playground and not get pushed to the side by the kids younger than her to make their way up the steps to the slide... They tell me she needs to get stronger. OK, but I want to kick the asses of these 24 month old that zoom on past her as she tries so hard to climb up the steps...Guess I really want to kick the mom's asses that let their kids cut in line and then ask me how old she is and I tell them and they look at me like I have three heads.
Monday, October 19, 2009
Tuesday, October 13, 2009
The first case of H1N1 was confirmed in the 3 year old room at Nina's school.
The school followed all the CDC's guidelines and the school is all bleached up.
Nina got a flu shot last month and not sure about the H1N1 yet. It's not even available to us at this time.
It's been 5 months since baby boy died and it's not getting any easier for me. I cannot be happy for friends, relatives, people in Gymboree class, people on the street or in my neighborhood (anybody really) who are pregnant or have babies under 5 months old. Baby envy...jealous rage... whatever you wanna call it...I have it, and I don't care.
This experience has changed me and I am not sure if I can change back.
The school followed all the CDC's guidelines and the school is all bleached up.
Nina got a flu shot last month and not sure about the H1N1 yet. It's not even available to us at this time.
It's been 5 months since baby boy died and it's not getting any easier for me. I cannot be happy for friends, relatives, people in Gymboree class, people on the street or in my neighborhood (anybody really) who are pregnant or have babies under 5 months old. Baby envy...jealous rage... whatever you wanna call it...I have it, and I don't care.
This experience has changed me and I am not sure if I can change back.
Sunday, October 4, 2009
Services
We had OT come out to the house this week.. the lady did not have her scoring papers (coming to my house was a last min thing so she was not 100% prepared) so she is coming back in a couple weeks...
Said that it's not strength that's a problem for Nina, it's body awareness(whatever the heck that means for a 2 year old) So hopefully we'll get it all figured out when OT comes back.
In other news Nina is going well in school. She's just painfully shy and the teachers tell us she does not really hang with the other kids, they are trying to break her out of her shell.
When she comes home though she tells me about her friends and is happy with life.
Yesterday at the park I met a nice young couple with a 3 year old boy. The boy took an interest in Nina so the parents took an interest in me. The woman was 38 weeks prego which still slaps me in the face...I, of course, did not bring up baby boy... I never bring up baby boy...they is really no mainstream conversation starter about deadbabies. I can talk about Nina being 1 pound and in the hospital for 102 days and yada yada yada but I really do not tell strangers about her sisters...
Maybe I should...maybe I just save it for theapy...
Anyway we got talking about Nina being 1 pound and blah blah blah...told them about her PT and OT...they just keep telling me how good she looked and she'll catch up right??? What does that even mean anymore?
Said that it's not strength that's a problem for Nina, it's body awareness(whatever the heck that means for a 2 year old) So hopefully we'll get it all figured out when OT comes back.
In other news Nina is going well in school. She's just painfully shy and the teachers tell us she does not really hang with the other kids, they are trying to break her out of her shell.
When she comes home though she tells me about her friends and is happy with life.
Yesterday at the park I met a nice young couple with a 3 year old boy. The boy took an interest in Nina so the parents took an interest in me. The woman was 38 weeks prego which still slaps me in the face...I, of course, did not bring up baby boy... I never bring up baby boy...they is really no mainstream conversation starter about deadbabies. I can talk about Nina being 1 pound and in the hospital for 102 days and yada yada yada but I really do not tell strangers about her sisters...
Maybe I should...maybe I just save it for theapy...
Anyway we got talking about Nina being 1 pound and blah blah blah...told them about her PT and OT...they just keep telling me how good she looked and she'll catch up right??? What does that even mean anymore?
Friday, September 25, 2009
updates
So 2 months ago Nina was evaluated by Early Intervention and they closed the book on her. Then she was evaluated by NICU followup program and they did not agree with the Gross Motor Eval so Nina started PT yesterday. We love the therapist(she is the same one we had last year)
She told me much of Nina's issues come from lack of strength. So we really need to work her out and get her legs and arms and core stronger. Nina at this point cannot really use her legs to push a little push toy... She also wants us to get a mini trampoline...
The more I spoke to the Therapist, the more it became apparent that Nina is weak in her hands too...So I emailed the EI coordinator last night to request a do over for OT to see if she qualifies. I think she needs to be 25% delayed. I do think the EI eval from July was crap and they overlooked a lot of Nina's delays and just wanted to say that a 24 weeker had no delays.
Now don't get me wrong, we all think Nina is doing AWESOME! She is a sassy, bright kid who talks NON STOP! She is happy and pleasant and does well is school. I, like all mothers, want the best for their child. I want her to have any or all services that she requires.
We have been told time and time again that we are fortunate that way Nina turned out. I get that, and I am grateful that she is doing so great. I had 4 kids and she is my survivor in more ways than one.
So that's my update in a nutshell. All I can say to you guys is that if get an evaluation and still think something is not right, ask for a do over. We did not for the Gross Motor...Thankfully the NICU follow up program spoke up and said No Way, she needs some help!!!
Always push harder for your kid.
She told me much of Nina's issues come from lack of strength. So we really need to work her out and get her legs and arms and core stronger. Nina at this point cannot really use her legs to push a little push toy... She also wants us to get a mini trampoline...
The more I spoke to the Therapist, the more it became apparent that Nina is weak in her hands too...So I emailed the EI coordinator last night to request a do over for OT to see if she qualifies. I think she needs to be 25% delayed. I do think the EI eval from July was crap and they overlooked a lot of Nina's delays and just wanted to say that a 24 weeker had no delays.
Now don't get me wrong, we all think Nina is doing AWESOME! She is a sassy, bright kid who talks NON STOP! She is happy and pleasant and does well is school. I, like all mothers, want the best for their child. I want her to have any or all services that she requires.
We have been told time and time again that we are fortunate that way Nina turned out. I get that, and I am grateful that she is doing so great. I had 4 kids and she is my survivor in more ways than one.
So that's my update in a nutshell. All I can say to you guys is that if get an evaluation and still think something is not right, ask for a do over. We did not for the Gross Motor...Thankfully the NICU follow up program spoke up and said No Way, she needs some help!!!
Always push harder for your kid.
Thursday, September 3, 2009
Starting PT again.
Last summer Nina qualified for PT services with Early Intervention and we are finding ourselves back with them. Last month at her EI visit she was age appropriate with everything but gross motor. They told us she has some low tone in her hips... So today she had an evaluation to see how delayed she is. She is performing at only 23 month level (she is 30 months old) so we qualified for PT services. She'll start up this month.
We are not at all surprised that something came up at this eval and are grateful she was delayed enough to get the therapy and training she deserves.
So yep the Preemie Fairy paid us a visit.
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